need your insights!

Hi everyone!

I am thinking about creating a plateform that can help patient find potential clinical trials that could help them (drugs, pain relief, surgery...) or just help research (data sharing...). Just want to open the discussion here and see if that could be something you guys could be interested in (or not) and why ???

To give a bit of context: I've been working in clinical trials by whole life and I realized that there is little or no information on clinical trials that are key to access medical innovation (just been diagnosed with endometriosis and had an awful experience and i met someone with cancer with the same feeling hence my post here).

Thanks for your help and your insights!

--- EDIT ---

After some great discussions with other patients, I put together a quick walkthrough: https://youtu.be/pzWWjb7sGvs. It’s still a rough draft, but does this seem useful? What’s missing? Would this be helpful for you (or not), and why?

Any feedback would be super valuable! I also created a short Typeform if you’d like to share your thoughts , stay in touch, or be kept updated if you like the project (totally optional, but much appreciated!): https://form.typeform.com/to/geze99dY

Thanks so much—I truly appreciate your help!