Why don’t people take this seriously
I don’t understand how it seems like no one but my really close friends actually believe that my symptoms are not easy to manage. I’ve been diagnosed for a couple months now, but I’ve had symptoms since I was in my teens. I used to always push myself because I didn’t know what it was. Within the last couple years my POTS symptoms have been getting worse and worse. I’ve been on and off disability for mental health and pots related issues for a couple years now. My family and partner seem to think it’s just going to get better. I love them all but it’s getting to a point where I’m so frustrated. My mom thinks that there’s ways that are going to make this better besides the usual salt, water and exercise. I understand wanting to help but I feel I’m already doing as much as I can without my symptoms flaring up. Unfortunately when I say I can’t stand or I need to go home, it’s never because I want to stop what I’m doing. It’s because I literally cannot do anymore and if I do I’m not going to have a good time for days.
I’m not sure if it’s just me lol, but when I say I can’t do something I usually get the look of disappointment in my answer, the look that says you must be exaggerating, or what do you want me to do about it.
There’s also the conversation about mobility aids and my friends said go for it but my family and partner think I don’t need it…
I’m am so grateful I have someone in my life that has empathy and understanding to what I’m dealing with but sometimes I just feel like I want to be seen by the people I love.
Sorry for the long rant ❣️