Transplant avoided
received some great news today. Had my second meeting with my transplant team (first one was back in October) Since that first appointment I had to round up propper disability coverage, go through and 8 week relapse prevention program and just generally ponder what comes next. Well today I went and gave my blood and urine sample, and had a really quick meeting that involved being told I will NOT be on any immediate list, there will be no foreseable appointments with the transplant team and just to keep doing what I’ve been doing as I continue to improve.
the most they seemed adamant was about ‘just because this is good, you should absolutely not start drinking’ Which I’m not saying is laughable. I know a lot of people still struggle with this but after a year and two months no of sobriety I do NOT ever touching the stuff again.
Now I just keep up with my hepatologist for the regular scheduled appointments and unless anything changes and I go down hill that’s all I’ll be dealing with.
I’m very happy, as much as the thought of having a fresh organ was lingering in my brain as a possible great thing, I’ve always been keen to keep the one I have.
Only thing I still struggle with are random days of exhaustion and fatigue but that’s my next new focus now that this is off my plate.
Oh and it wasn’t all a waste of time- The 8 weeks replapse prevention program opened my eyes to sooooo many ways to cope and deal with life in general.
And if anything does go downhill I’ll have my disability insurance ready to pick up the slack and the hospital has all my charts tucked away so the process would still be a short one.
That’s all from me, Wishing everyone here a great day!